Monday, December 19, 2011

Lot's Happening...

Hard to know how to title this post!


Lots happening-


Hubby's work computer crashed...


Our freezer is no longer working...


And we have random lights in the house that no longer work (electrical issues)...


I'm trying to block the fact that this is the Christmas season and all the things I normally do... I cannot do...


We are just focusing on having a good attitude, doing all the things we need to do, minus all the Christmas stuff that we usually do...  and preparing our hearts for one of the most important days of the year!


While, at the same time,  trying to become a new enlarged family and somehow finding our new normal- which will take a little bit of time.


Abby has been increasingly pale and pasty looking with dark circles under her eyes. In spite of that she stays awake all day and colors and plays with all the children. I took her into the DR today to check her HGB(hemoglobin)- it was 6, just 20 days earlier she was at 12.6. That's not good...


They are awaiting our call tomorrow morning and will get us into the hematologist. Most likely she will be transfused tomorrow, too. She is such a dear sweet child- and yet such a trooper- she doesn't complain at all. Honestly 48 hours home, jet lag and she still keeps up with the other kids- I think she is amazing!


The Dr- also listened to Luke- he is somewhat irregular (but she was not alarmed) and she heard two murmurs- we will also be contacting the Peds cardiologist tomorrow(our appt is scheduled for next week but we may want to get in sooner). He is wheezing but not bad and we will start neb (pulmicort) tomorrow, too.


We have noticed that Luke does not run like the other kids. He self regulates his activity level and will gladly hold a parent's hand while the other kids run ahead.


Both of these children are so dear and so amazing. They are more delicate that our other children- at least that is how we feel. Their health issues are serious and life threatening. We need to know exactly where they are at "health wise" and go from there.


We are blessed to have them and pray that our Heavenly Father will be with us every step of the way!


(Maybe pics later or with next post!)

16 comments:

Hanna said...

Praying that Abby and Luke will recover.

Sophie said...

Oh goodness friend, you do have a lot going on. Praying for your littles health, stay strong.

Sally-Girl! said...

Praying for your lambs!!!

Lori said...

I will be praying too. So thankful they are getting good medical care!

Praying for YOU too as you deal with all the mishaps around the house and get ready for Christmas. Tons on your plate right now, so give yourself GRACE.

Nancy said...

Praying that your two littles will get good doctors' reports. Have a blessed Chnristmas with your new and improved family.

Janet and Kevin said...

Praying for a smoother time at your house. Our Eli self-regulates too - he also has a heart defect. Over time, he has gotten stronger and stronger and doesn't need to sit out as much when the other children are playing! Praying for your two treasures to become healthier and healthier under your loving care.

Merry Christmas -
janet and gang

Jennifer said...

Praying for your little sweeties! Have a very merry Christmas!!! :) What a blessing to have your littles under the same roof!:)

Sammy said...

Praying for the doctor to get them straighten out quick. Merry CHRISTmas!

Jo's Corner said...

Hi Jean ~ I think you are going to be surprised when Mia gets the blood! She's going to be a different little girl. I agree, 6 is way too low. That's probably why you were seeing some behavior issues on the flight home. I have Chronic Hemolytic Anemia and 2-3x a year, I go in for blood. It's amazing how much better I feel after a couple of units! I will continue to pray for all of you as grow together as a newer, bigger family. Keep us updated on the Newbies! Hugs ~ Jo

Jennifer P said...

As you know, the knew normal will come in time. What a "blessed" roller coaster. But Jean, you wouldn't have it any other way, would you???

Cari said...

Prayed for your family this morning!

You are very wise in not trying to do all the normal Christmas stuff. Just take it easy. Like Lori said...give yourself grace.

"Are These Kids All Yours?" said...

Sooo glad you are home!!!!!!!!!!!! Praying for all the transition and the season of Blessings too!!!! Praying for wisdom with health issues for you and the doctors!!!

Annie said...

Praying for your precious, beautiful children, Jean!!!!

Kelly said...

My life got crazy busy, as did apparently your life! It took me awhile to catch up!

Goodness, congratulations! TWICE! I missed BOTH sets of adoptions... Though I followed long enough to know that Ava and Sam were coming! LOL

What a fantastic family!

Sarah said...

Praying for your sweet babies.

Jodi said...

sweet sweet babies! so wonderful that y'all are home for Christmas, even if it's not with the normal traditions - soo thankful your babies and y'all are home safely! Praying for wisdom for your dr's!