Wednesday, January 11, 2012

Follow The Leader!

As each day goes by we continue to move in the right direction.

Both Abby and Luke are beginning to become so much a part of our family.

As a mom, I can tell, when I hug them they fit into my body. The awkwardness is leaving and with each day we are becoming mother and child/ father and child. It is a very nice feeling!

These days have come with some challenges and much prayer as appointment after appointment we move forward to figure out our children's health mysteries. Once again GOD does not disappoint - but instead guides us each step of the way!

Yesterday was exhausting... I brought Abby in for an ECHO, blood draw and an appointment with her hematologist (and possible transfusion). Each time we go she will most likely need a transfusion but we need to wait for the labs. They will not give her a transfusion unless is is completely necessary due to her iron overload. At this point we are figuring every 3 weeks.

After each appointment we went to - she was so happy... she thought she was done and she could return home.

AND then each time we made our way to a new office, her expression changed to sullen AND then serious. 

Once she found out she was having ANOTHER transfusion she cried and cried and cried. It was so so sad... 

Her cry was so full of hopelessness... 
My heart broke...

We had a interpreter this time and she was wonderful. She told us that Abby kept saying over and over again - "I just want to go home with Momma and Babba..."

The interpreter had tears in her eyes...

We were at the appointment from 1:00- 9:00 and when it was over we were completely emotionally exhausted...  WEll, let me rephrase that, I was exhausted and of course, Abby felt great after a transfusion!

Each time we go the Dr and her staff are wonderful BUT next time they ask me "What can we do for you?" 
 I will say, just get us "in and out" of here, asap!

I have been praying a lot lately- whether it is planned or unplanned, it is just happening ALL the time. 
God is so good and so kind, I know he is ALWAYS with us, through thick and thin.

For the last three nights, I have heard messages that were so right on- so from our heavenly FATHER.

Last night I prayed and the Lord said- "Follow the Leader"

Dear Friends... who do you follow? Do you follow God or your neighbors advice. Friends and neighbors are wonderful and often give great advice BUT please take your questions one step further, to HIM. 
HE will answer!

Is there an area in your life that you need clear direction on?

Is there a decision you need to make today?



Follow Your Leader!

He will lead you down paths of righteousness and peace! He will not disappoint! He will guide you every step of the way and NOT leave you!

The next morning, I woke up with peace. I know God has a plan and I need to put all my trust in HIM!


"So you see God is with us. He is your leader."
2 Chronicles 13:12


kimjax said...

Needed to hear this today "follow the Leader." Thanks, Jean! Glad things are going well - we head out shortly. :)

Cari said...

amen! it's good to obtain godly counsel, but sometimes we seek that more than going directly to the source. praying for your family, jean!

Sarah said...

He is a wonderful leader, isn't He?!

"Are These Kids All Yours?" said...

I just love your family!!!! And your willingness to FOLLOW HIM!!!!!!!!!!!!!!!

Thank you God for knitting this wonderful family together :)

Sammy said...

That is a great message. Also, Little Ava always looks so happy!

Susan A said...

Amen about Follow the Leader :) I hope you're having your energy back after busy days! :)

Annie said...

Thank you Jean:):):)

laurajonesjournal said...

I love that, Jean! He is our leader and HE IS who we should follow.
so I will be thinking of abby...she's on the same plan and mine right now! wish we could meet up with you every three weeks. we take xjade to decrease iron (their levels are in the 10,000s). That's what I'm praying for, no more iron!
Healing. But most importantly their little hearts, following their LEADER and loving Him.
thanks for sharing your words.

Shelly and Family said...

Hi Jean! I must admit - this is my first time posting a comment to your blog but I have been following it for some time now (c/o CCAI waiting child yahoo group and my dear friend Jennifer Theis). Anyway, I LOVE reading every post and I look forward to seeing what you have to offer each and every day. We are currently getting ready to travel for our son this coming Feb and we are over the moon!

Again keep the post coming!