Tuesday, February 7, 2012

China Was Right... ABBY

My head is spinning right now and I'm a little weak in the knees...


But God is so good and he is in charge of all of this... so... I know he has a plan and we will just move forward prayerfully...


We heard from Abby's doctor today. She has MDS- (myelodysplastic syndrome- sp?) such an odd diagnosis for such a young girl but it is possible and it our daughters diagnosis...
We are not really surprised... underneath it all we assumed China had the right diagnosis. BUT when there was no sign( or records) of a previous bone marrow biopsy we hoped maybe they were wrong...


They are continuing to do genetic and chromosomal studies which will provide us with the likelihood that this could turn into Leukemia and give us other important information.


There seems to be some urgency in treating her asap. They do not want it to turn into Leukemia so we need to get moving on treatment. The chelation treatment is to remove the iron in her body- that was supposed to be starting in May or June but we will now be starting this month.


It is good to have direction and to have some answers... We are so thankful to GOD!


Abby is acclimating to her new home! She has been with us since November 30th and home since December 17th. Finally after 6 weeks we are seeing who she truly is... and we really LOVE what we see!  We are getting past the whining and the slightly spoiled attitude to a completely delightful and sweet little girl. 


Because of her health situation I am guessing that they did whatever they could do to "make her happy" which in all honestly consisted of some qualities that are not desirable BUT instead quite challenging.


In a family with 8 little ones those qualities have had to be put aside and what we are seeing BLOOMING from our daughter is quite nice! God is so good!


She is now attempting to speak more english and repeating many phrases that the other children are saying. Instead of turning her nose up at food and pouting because it is not what she wants, she is trying different foods and happy with herself when she finishes! She no longer laughs at other children BUT now understands when we say "that is not funny". It is quite cute and I am sure her laughter was more nervous laughter and she was just uncertain how to respond BUT now she is more kind and desires to be more polite.


I believe she feels more secure- with 3 transfusions and many procedures later, her new Momma and Babba have not left her side! We no longer have hours and hours of tears when we arrive at the hospital but actually enjoy some quality time with her. She loves coming home to her family!! She knows it is always something she can look forward too!


This sweet girl deserve the best medical treatment we can give her! We are so thankful that God made it clear to us in May of 2011 that "she needs to come home"!


We prayerfully ask that you keep her in your prayers and support us as we continue on God's path...


Next post will be the results of Luke's CAT scan and the recommended treatment.

17 comments:

Susan A said...

I love that she is being well cared by your family :)

From the Erben Gang..... said...

I love the photo of you with your little ones.. and so happy for Katie!! Thank you for all your post..we all eagerly await them! China was right?! Well, you did seem to sense that already. Thankfully you got her and Luke home so soon. Saying prayers for you all!. and know we are here , following along. xo

Love for Lilly Yin said...

Praising God that she is in a loving family.

Lori said...

Oh, wow. Bless her heart! I will be praying as you go through the treatments. Keep us updated.

So thankful she's in a great family, getting the best possible care!

Janet and Kevin said...

Will pray for your sweet little ones and you and your husband as you travel this medical road with them. So glad your beautiful children have such a loving mama and baba to fill their lives with joy (as I know they fill your lives with such joy as well)! Praising God they are home where they belong!!

:)
janet and gang

Annie said...

Oh Jean!!! I was so hoping that China was wrong!!!! I will keep your sweet girl in my prayers for sure!!!

Shonni said...

I’m so glad that she is settling in and feeling more comfortable!!!
I will also be praying for ya’ll!!
loves,
Shonni

Cari said...

I love hearing when the parents feel that their children are settling in. The moments leading up to that can feel so overwhelming. Praying for wisdom for the doctors and God's healing for all your children with medical needs. You're doing an awesome job, Jean!

living4him5 said...

Jean,

I am praying for your baby girl! She is so precious!!

SHe is right where she needs to be getting the best medical treatment possible and all the while in a loving forever family.

Hugs,
Amy

The Rylands Family said...

Jean, SO grateful that you now have the needed information to proceed with treatment. Cameron, our second older boy (home 5 weeks) still laughs a lot when he gets nervous or is reprimanded for anything. It is lessening with each week that passes. I love seeing you walk down this road with your children with such grace and peace from the Father. Angie

Jen said...

So glad Abby has such a loving family to see her through all these important steps in her health, faith and life!! My continued prayer for your family!

Holly said...

Praying as you continue along this road...and so thankful with you that she is doing so well!

Becky said...

We will so be offering our faith in prayers in your beautiful little baby girl's behalf. What a wonderful blessing you are in her life! You are such an example of faith, courage, and following God's lead, even when the road ahead is not an easy one. Thank you for your example. Our best prayers and wishes are sent your way!

Sally-Girl! said...

Praying for your babe and your babes!!

So glad you and Jim took that leap of faith for that sweet little girl with the sucker in her mouth!!!

Proud of you friend!

The Byrd's Nest said...

Praying for all your needs my friend!!

Sammie said...

I'm sorry that your little sweetie has to deal with this, but at least you now know what it is she has. I live in Seattle and when I did a search it looks like the Seattle Cancer Care Alliance, does research and treatment. If you should ever need to come out this way for a consult, please know you always have a place to stay. http://www.seattlecca.org/diseases/myelodysplastic-syndrome-overview.cfm?gclid=CPWMi5v4ka4CFQpshwodvhpKMg

Difference2This1 said...

Thankful your sweet girl has the care she needs...and a wonderful family to be right there to help her through it. Blessings, Jennifer