Wednesday, October 10, 2012

Absolutely Amazing and Praising HIM!!

Today was a big day!

Abby had an abdominal ultrasound and a blood transfusion.

AND
we met with her hematologist...

They have a DIAGNOSIS...


Abby DOES NOT HAVE MDS!
(mylodysplastic anemia syndrome)

Her official diagnosis is-
Congenital Siderblastic Anemia.

What does this mean?

It means so so much!

It means that the God of Gods, the King of Kings heard our prayers and petitions!
It means that he has moved mountains for our little girl!
It means that Abby does NOT have cancer!
It means that her condition will not progress and turn into Leukemia!
It means that we are not battling time in regards to her bone marrow transplant!

Abby was born with this condition. 
Her body is not able to utilize the iron she consumes through food and that her bone marrow is unable to produce healthy red blood cells that can carry oxygen in her blood.
Therefor she needs regular blood transfusions- every 3 weeks to maintain a healthy hemoglobin level.
And she needs chelating meds to get the iron from the transfusions that accumulate in her body(stored in her liver and spleen).

She could continue with this regiment for the rest of her life OR she could have a bone marrow transplant- which could cure her.

There are many risks with BMT and it is a long a difficult road- about 1-2 months of doctors, hospitals, feeling sick, losing her hair, prayer, blood tests and uncertainty. Then another 3-4 months of daily clinic visits, blood tests, restricted environment, and prayer.

Now that we have a diagnosis, we do not have to rush into the BMT. We can wait until her liver and spleen are healthier and her iron overload is down to a near normal level. We can continue to look for an even better donor match. 

We can take a breath and praise the Lord!

Abby's blood and bone marrow were sent to Boston Children's Hospital. 
We waited many months for the results to be determined.
We are so thankful for a diagnosis and we are so thankful that she does not have MDS!

We are praising God and doing the happy dance!!

We are in awe of HIM!

THANK YOU for your prayers!!
HE has heard them!
Please continue to keep her in your prayers she prepares for her future bone marrow transplant.

THANK YOU JESUS!!






32 comments:

Nancy said...

What wonderful amazing news!

Jen said...

Praise the Lord!!! Wonderful news!

Waitingfaithfully said...

Oh what wonderful news! Rejoicing with your family, and so thankful for Abby's new diagnosis! Lord, please continue to keep Your healing hand upon precious Abby!

Blessings~

Tina

Diane said...

Thrilled to hear such wonderful news!

Julie said...

What wonderful news for your family. We serve an amazing Lord!!

Susan A said...

I am so thrilled!!! praising the Lord :) :) halleluYah!!!

Joining in the happy dance with you! :)

Vicky said...

I'm so thankful for this great news! God is AWESOME!

Jboo said...

What great news! So happy for you and your family.


Sarah said...

How wonderful!!!!! Thank you, Jesus!!

Lori said...

PRAISE JESUS! Wow, what a MIGHTY God we serve.

I'm rejoicing with you, friend!!

Emily said...

Praise God for that news, Jean! Celebrating God's goodness with you!

Pam

Cari said...

What wonderful news! So happy for your little girl and your family :)

Shauna said...

Oh Jean, how absolutely wonderful!! We serve a mighty God!! Praising God with you!

Tesseraemum said...

WOW! That is just AWESOME!!

Praising God along with you!!

Eileen said...

What a huge blessing!!!!

Jodi said...

Thank you Jesus!!! Dancing in Texas!

Sharon said...

Praise the Lord! This makes my day...love hearing about His faithfulness and such good news for Abby! Yeah, Jesus!!!

thesleepyknitter said...

Wonderful, happy news! Praising God with you!

kimjax said...

So happy for you all, Jean!!!! Praising the Healer!

Learning Together at Home said...

Amazing news!!!!

Hanna said...

Wonderful news!! Praise the Lord! Halleluyah! Rejoicing with you in happy dance and praising the Lord :) Will continue to keep Abby in my prayers.

"Are These Kids All Yours?" said...

PRAISING JESUS!!!!!!!!!!!!!!!!!!!!!!!!!!! HUGE HAPPY DANCE!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Sue said...

What awesome news...congrats.

joeks said...

Wonderful! Thanks be to God!
And yes, Abby will remain in my prayers.

The Heald Family said...

Yea!!!!
Thank you Lord!

Janet and Kevin said...

So, so happy! What wonderful news for Abby and for you!

Hugs,
janet and gang

Laura L. said...

Jean & family,
That is such precious and wonderful knews. Praise the Lord! Awesomeness!!!!! Congratulations

Janet said...

Wonderful!! I know it is a huge relief to finally have a diagnosis nailed down!

Sally-Girl! said...

Praising God with ya!!!

Wendy said...

Only God can do this!!!!! It is wonderful news!!!!

Sammy said...

Yes, thank you Jesus!!

Nicole said...

This is wonderful news! Is this form of anemia progressive in any way, or can a person manage the condition with rbc transfusions every 2-3 weeks and daily chelation? I ask because my son (adopted from China) has beta thalassemia major and is transfused every 21 days and chelated with Exjade (which has worked incredibly - from severe iron overload on the ferriscan when first home to normal range for transfused patients in 10 months on Exjade, and one year later, to a normal range for a NON transfused patient. In fact, his Exjade dosage has been reduced!).